5/26/15

Spontaneous isn't All That Great

So here we are...again. The night before another surgery.  This one on his eye.

Sometime over the last couple days, the Hubby detached his retina.  And cannot see out that eye at all. 

How do you fix that?! Well, surgery.  Eye surgery.  And even though it's out-patient, the recovery at home is not fun.  Hubby will have to lay facedown for 23 hours a day for 5 days.  He can get up for meals and quick shower but other than that, facedown.  It's really hard under normal circumstance but remember - he has an 18 inch incision on his abdomen right now that is still only 6 weeks old and therefore still very painful.  

Detached retinas can happen to anyone for dozens of reasons. When you are have Marfan Syndrome, they can be spontaneous.  Literally one day things are fine and the next they aren't. That's what happened to the Hubby this weekend. Spontaneous detachment. Aren't we lucky?!

The plus side is we have done this before and we know the surgeon.  And he is really good at what he does.  The good news is also that this surgery should restore Hubby's vision over the next month or so.  But it's another surgery.  Another added recovery to the one he is already managing.  

I struggle a lot with trying to take care of the kids, a dog, a house, my businesses, and life in general on top of caring for Hubby during major recoveries. This new surgery is tough - it has to be done immediately but that means I lose the little bit of help he can do right now around the house.  

So tonight I prep - laundry started, work emails out, phone chargers packed. Kid care is priced together with friends who still manage to say "okay" when I ask for more help with my kids and family who loves the time with the kids but who is also ready for some normalcy.  It's hard on everyone. 

But what I try to tell myself is this: Yes the last few years have been hard. Really hard.  I am tired - mentally and emotionally and physically.  So is Hubby.  He is tired of being the patient.  He is tired of hurting and he is tired that recovery is hard on our family. But we get through it.  Day by day. Sometimes it's hour by hour. But we get through.  And someday, it will all be okay again and we can get back to the business of being us (we used to be super fun, social people - this recovery life doesn't lend itself to that). 

But first, we are perfecting our recovery skills one more time with retina surgery. 

We will win this battle. Together.  

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