6/17/16

New Eyes

I just looked back at the posts for the past few months...and I realize that all you see is Grace.  Her eye surgeries and then her recovery struggles.

Yesterday made all of those hard moments okay.

Grace got her new glasses. It took almost a month for these lenses to be researched and produced...it was frustrating for all of us waiting this long. But the look on her face when she opened her eyes was amazing.

She could read a restaurant sign across the street. She read me text on a business card.  She saw her own earrings in her ears when looking in a mirror -- this is the first time she said she could actually SEE them clearly on her own.  Can you imagine that?!

As her eyes get used to the new lenses, her headaches will get better.  The fatigue should go away.

And oh how I cannot wait to hand her a book this summer and watch her experience reading clearly and easily!!!!


5/25/16

Brave Girl

After 9 days of recovery, we are trying school again today. I am so proud of Grace - she can't see further than 3 feet in front of her right now but she asked to go back to school even before her new glasses arrive.  It's not going to be easy - she can't see the board; she can't read a worksheet; she can't see the music during violin rehearsal. But she can learn by hearing the lesson and she can show the rest of her classmates what it means to be brave and strong during a scary and confusing time.  

Can you imagine not being able to see your friend on the other side of the table?! I can't. But Grace is going back to school just like that.  She's going back wearing her dad's old glasses just so she can see a little tiny bit better.  She's going back after missing a total of 13 days of school this month due to surgeries.  

She is my hero. 

5/9/16

Today It All Worked

With two full time jobs between Hubby and I, three kids with very different schedules and needs, and medical issues that always seem to need attention, each day is different here.  

My grey hairs grow pretty quickly (and let me tell you - I am WAY overdue for a visit to my hair guy - note to self....schedule that pronto!).  Almost every day, I have an internal dialogue with myself about how tomorrow/next week/next month/next project, things are going to run smoothly and efficiently and exactly as planned.  Come back to read more after you stop laughing!!! :) 

Hubby and I run through schedules quick and decide who is taking which kid to their school/daycare in the morning and which one of us can be back on this side of town in time for pickup each day.  Its a give and take and beg and plead kind of situation.  

But sometimes, the madness just works.  

Today was one of those days.  And so it deserves a blog post to mark the occasion. 

Traffic cooperated this afternoon so I could drive from Point A to B to C for Grace's post-op appointment.  Then we rushed, through traffic again, to Point D and E for day care pick ups with perfect timing.  Dinner was in the slow cooker when we walked into the house. No one cried over the chosen menu tonight.  Bedtime was met with hugs and kisses and zero tears.  Homework got done and the violin was practiced.  

On top of all that, I wrote a list of eight things that needed completion tonight for a special event client of mine --- with the event less than a month away, we have a million details to confirm.  Six of those items are checked off and done. Not too bad! 

Weekdays are tough - there is such little time each day when we are all home and awake together. Most nights, Hubby and I see each other over the tops of our laptops on the couch.  Tonight, I can see the top of his head in the recliner as I sit in my office corner confirming event lighting and catering menus. 

I am typing this out and that inner dialogue is running. WHAT about today made things go exactly as planned?  WHY today? WHO made all that happen so well? And I think the answer is really simple - while at work, while with Grace at the doctor, feeding the kids dinner, and then working at home - I was 100% (okay, 90%) focused on the task in front of me.  I wasn't juggling three things at one time - the list was on the counter for work time so I was able to stop thinking of what needed to be done and just enjoy chatting with the kids tonight.  I was able to focus on Grace's medical questions at the doctor and plan out the next surgery without listening to the beeping of incoming emails.  

It's crazy and exhausting and sometimes its really hard to get through the day.  But days like today remind me that it's all possible.  

5/2/16

New Eyes

I've had mornings like this more than I can count anymore - finding comfy clothes for me, ensuring no breakfast for the patient, and packing a bag to entertain myself for one to six hours in a bland waiting room.  I like to think I'm pretty good at this!

This time feels so different. This time I am going through my pre-op checklist for my daughter, not my husband. It's basically the same things that need to be done but for some reason, it feels so different. 

Grace is having the first of two surgeries to remove her lens in each eye. They are preventing her from having good vision and we are seeing the affects daily - it's time to make things better.  

It's a fairly simple straightforward and routine surgery.  Doesn't make it any easier though - not to mention I have heard that one before and it hasn't been easy!

So if you are reading this, say a prayer - spread good wishes - think happy thoughts....whatever it is you do, send Grace (and her worried parents) a little love today.  

I cannot wait for her to see the world with new eyes!!