|Ang, Maya, and me|
Since I started following Maya's blog, we have both had a second child, had new Marfan-related challenges, and have exchanged emails about Marfan Syndrome, the kids, doctors, and navigating Hopkins (where so many of the Marfan specialists are).
This weekend, we got to meet. And it was so great!!! Ang, another Marf-mom, and her family were there too.
The families got along great --- Grace was so good with Maya's little boy and the babies had a blast playing in the sand box at the children's museum. And us parents just enjoyed meeting and chatting in person rather than via email.
|All the kids - 3 of them with Marfan Syndrome|
But now, I have new MarfMoms to reach out to and Grace has Marfan role models to look to as she grows up.