A Loss

Victor McKusick passed away 2 days ago.

What a devastating loss for the Marfan community. Because of this one man, we know how to manage Marfan Syndrome, what to look for, and that those affected with the syndrome can still have full lives.

He diagnosed Hubby when he was a child and he taught Grace's doctor everything he knows so we are actually feeling the loss pretty personally.

1 comment:

Bri said...

I know that with all thats been going on - even the loss of this remote connection - hits home. We're always thinking of you guys as you figure out your path.